Support available from the Scottish Cot Death Trust

To find out how you can get access to any of our support services, please contact us.

> Initial Contact and Home Visiting

The Scottish Cot Death Trust can provide information about cot death and the support services available for families. They will listen to you and offer support to help you cope with your loss.

Home Visiting

The Scottish Cot Death Trust’s community based outreach bereavement professionals cover the whole of Scotland. You will be introduced to the professionals covering your area. They will be your dedicated support point of contact.
Our bereavement support worker can visit you at home to provide support, practical advice and information that you may need to help cope with your child’s death. Time can be spent listening to you and discussing the range of support services that are available to help you cope with your loss. Again, the Scottish Cot Death Trust covers the whole of Scotland, so regardless of where you live we can offer support.

> Befriending and Peer Support

The Scottish Cot Death Trust can put you in contact with another person who has also suffered the loss of a baby or child to cot death. You can meet your befriender in person; speak to them by phone; through email or texting – the choice is entirely yours. We also have a closed facebook group, which you can be invited to join.

This service is available to other members of the family as well. It is quite common for grand-parents to want to speak to another grand-parent.

> Family Days

When your baby or child has died suddenly and unexpectedly, it is common to feel very isolated and that you are the only person this has happened to. Many families find it very comforting to meet other families who have had a similar experience.

The Scottish Cot Death Trust organises Family Days in different locations in Scotland at different times of the year. They are free to attend and are usually held somewhere like a science museum or the zoo. This means that as well as having a family day out, you can meet other bereaved families in a relaxed and more natural way.

> Counselling

A professional counselling service is available for individuals directly affected by the loss of a baby or child to cot death. The service is provided free of charge to the family and all counsellors have been trained and have a good understanding of the unique aspects surrounding a cot death.

The service is confidential and we have no waiting lists, so family members can usually attend their first counselling session very quickly. It should be noted, however, that we generally recommend that bereavement counselling should not commence until at least 3 months after bereavement. This is to allow the early stages of the grieving process to begin naturally.

Counselling is available to family members individually as well as having counselling as a family unit.

> Next Infant Support Programme

When you have lost a baby to cot death, the arrival of a new baby can bring huge anxieties that it might happen again. The Trust works closely with each of the SUDI paediatricians across Scotland to ensure that when bereaved parents are expecting a new baby, they will receive extra care and support during the pregnancy and after the birth. Through the Scottish Cot Death Trust’s “Next Infant Support Programme” we aim to support you during your subsequent pregnancies; after the birth and for as long as our support is needed.

> Apnoea Monitor Service

As part of our “Next Infant Support Programme” we can provide an Apnoea (breathing) monitor to offer peace of mind with the new baby. The monitor will sound an alarm if the baby stops breathing. All parents will receive resuscitation training before receiving a monitor to ensure they know what to do if the baby has stopped breathing.

We currently use three different apnoea monitors:
Smiths Graseby MR10
Central Medical Siss Baby Control
Snuza Hero MD

You can read one parent’s experience of using an apnoea monitor by clicking here.

> “Precious Memories” – Garden of Remembrance

Nothing can ever replace your child, but some parents find it helpful to create a lasting tribute to their child by setting up a memorial in our garden of remembrance. To view other “Precious Memories”, or to create your own, please click here.